About:

A middle aged couples` struggle with one partners` vascular dementia in progress. A journal of their life with debilitating and un-stoppable disease. Sharing the care givers` experiences in an attempt to inform, educate and help others understand the progression of this terrible infliction.



Monday, 15 May 2017

Having a better day

Days are never the same with his problems. But, today seems a better day as we have
not had major outbursts of anger. I was always quick to divert the onset of possible
OCD led outburst. Weather this has anything to do with the fact that we both had a
later start to the day than usual, I don`t really know. Keeping the household running
smoothly and being able to do chores without him wanting my attention at least every
few minutes is becoming difficult. He watches TV a lot during the day and will call
me into the living room to discuss what he`s watching, or wants to show me something,
so I find ploughing through housework taking at least twice as long as it used to. He`s
also become much more verbal since the onset of the disease, so I feel bombarded with
sometimes repeated conversations and his obvious need to be talking until the cows
come home. He`s also become more controlling in his behaviour; has the need to be
fully informed about the way I intend to cook lunch or dinner, and will often follow me
into the kitchen to determine what I`m doing. He then will stand next to me and talk to
me constantly, trying to influence my preparation of the meal. He will find excuses to
be in the kitchen with me, so getting on with my tasks is sometimes very stressful, too.
Sitting by himself in the living room whilst I`m cooking seems virtually impossible for
him to achieve. The only time he can be distracted for a short while is when he`s looking
at films or pictures on the computer, or he has put his favourite music on to play whilst
he`s busy with the computer. I now often feel that I only ever get a short period of peace
and a little tranquillity for myself if I tell him that I`m popping out to the shops to get a
few food basics. But, as soon as I return from my little outing he feels the need to totally
bombard me with his constant talking and attention seeking, afresh. There is no let-off
with this, not even over dinner. His dinner will often get cold as he sits and talks all the
way through it, whilst I rush through mine so that I can escape to the kitchen to do the
washing up in a little bit of respite from his bombardment of words. - To think that he
used to be such a private and quiet individual that never talked much about his former
life before we met is now impossible to imagine. Back then I would have given much
for him to speak about his childhood and family life much more. Now, I often wish he
would be quiet to let me get on with what needs to be done. - In the evenings he seems
to calm down a little so I get at least an hour or so to sit at my computer upstairs as he
will watch something on his computer in the living room, downstairs. He doesn`t settle
easily to sleep at night and often comes to bed after me. I help him get ready into his
PJs and when he takes a shower or bath, then make him a cup of tea before I leave him
in front of his computer before I go to bed. Lately, he has often lost himself in several
films to watch and doesn`t go to bed until 3am or even 5am, only to get up again by
around 9.30am. The times in bed during night time seem to get shorter, but at least he
does take a nap during the day on at least two occasions in the week.
Tonight, he has taken it upon himself to do some easy cooking, but still needs some
help with that. He could not remember in what order he had to cook the food, so I
had to make sure he knew which bowl had the veggies in it that needed the longest
cooking time, and he was aware to use those first. He can be left to do some tasks,
but needs to be checked from time to time just in case he experiences some sudden
loss of muscle control, therefore is dropping things. Keeping him busy with easy
tasks seem to help divert his attention seeking and constant talking as well, so I will
need to find him some more bits to do in the home as long as I can supervise him.

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